Depersonalization and derealization disorder

the_scream
Edvard Munch’s ‘The Scream’ is thought to have been inspired by depersonalization disorder.

I originally posted this article in 2007. At the time, I didn’t feel comfortable sharing my story online. Over the past few years, I have been amazed at the number of people who have found this post and either commented or emailed to let me know about their own struggles. Although I try to reassure them things will get better with time, I feel like those words would be more meaningful if I shared my own experience. With that goal in mind, I am rewriting this post from scratch almost seven years later.

I should probably point out that I have never been officially diagnosed with this disorder. Based on the symptoms I have had over the years, the commonality with so many who first experienced DPD after drug use, and various articles I have read online, I definitely believe I have had or continue to have depersonalization/derealization disorder.

Wikipedia describes the symptoms as follows:

The core symptom of depersonalization disorder is the subjective experience of “unreality in one’s sense of self”, and as such there are no clinical signs. Patients who suffer from depersonalization also experience an almost uncontrollable urge to question and think about the nature of reality and existence as well as other deeply philosophical questions.

Individuals who experience depersonalization can feel divorced from their own personal physicality by sensing their body sensations, feelings, emotions and behaviors as not belonging to the same person or identity. Also, a recognition of self breaks down (hence the name). Depersonalization can result in very high anxiety levels, which can intensify these perceptions even further.

Common descriptions: Feeling disconnected from one’s physicality; feeling like one is not completely occupying the body; not feeling in control of one’s speech or physical movements; and feeling detached from one’s own thoughts or emotions; experiencing one’s self and life from a distance; a sense of just going through the motions; feeling as though one is in a dream or movie; and even out-of-body experiences. Patients suffering from depersonalization disorder have also certain visual stimulations such as hallucinations and rapid fluctuations in lighting. While the exact cause of these hallucinations has not yet been determined, it is generally accepted that patients suffering from them is caused by previous drug usage. These hallucinations differ from true hallucinatory phenomena as they are closer to being optical distortions or illusions rather than psychotic breaks. Individuals with the disorder commonly describe a feeling as though time is ‘passing’ them by and they are not in the notion of the present. These experiences which strike at the core of a person’s identity and consciousness may cause a person to feel uneasy or anxious.

First experiences with depersonalization may be frightening, with patients fearing loss of control, dissociation from the rest of society and functional impairment. The majority of patients suffering from depersonalization disorder misinterpret the symptoms, thinking that they are signs of serious mental illness or brain dysfunction. This commonly leads to an increase of anxiety experienced by the patient which contributes to the worsening of symptoms.

My experience with some of these symptoms started one evening after smoking marijuana and having a panic attack while still under the effects of the drug. I freaked out, vomited, took a cold shower, and went to bed. From that point, it felt like time stopped. I literally thought I had died and entered the afterlife, because it felt like I had been suspended in time. I would look at the digital clock beside the bed, close my eyes for what seemed like forever, then reopen my eyes to discover a single minute had passed.

I was distraught to still have the same feeling when I awoke the next morning. Over the next several weeks, I had severe issues with depersonalization/derealization. My body felt foreign to me. I felt like I was living inside of a dream. I felt completely disconnected from the life that was continuing around me.

Several days after the initial onset of symptoms, I sought medical attention at the emergency room. The doctor there sent me for evaluation at a local rehabilitation facility. After explaining my symptoms, they recommended that I enter an outpatient program immediately or they felt I would be hospitalized within two weeks. I decided to try medication instead.

My doctor placed me on Paxil, and I believe it saved my life. I had never even heard of depersonalization/derealization at that point, but I remember reading a sentence about feeling disconnected in the informational brochure the doctor gave me about Paxil. I felt so relieved to have a description for what I was going through that I wept.

Although some of my symptoms lingered for a few years, they gradually subsided. The problem that hung on the longest occurred when I was driving at night. I would suddenly get a feeling that the world outside my windshield existed only in 2D, like playing an old-fashioned video game. It would cause such a surge of panic in my body that I would have to pull over and let someone else drive. Having conversations about eternity and space would often have the same effect.

The first time I ever heard of depersonalization disorder was while watching the very disturbing film Tarnation several years ago. I immediately knew there was a relation between what the director was experiencing and my own symptoms. It was nice to have a name for what I was going through, and it was comforting to know I wasn’t alone.

Today, I have little to no residual symptoms. I usually don’t even think about it. That’s why I wanted to take the time to update this post and let visitors know that even when it seems overwhelming and impossible to endure, there is hope. Talk to your doctor. Talk to your parents. Don’t suffer in silence. You will get better!

A quick footnote about marijuana

Much as been said in my post and in the following comments from others about DP/DR starting after use of marijuana. While it is easy to make the assumption that the two things are connected or that marijuana played some role in causing depersonalization, this article by Ronnie Freedman, Ph.D. concludes that marijuana is simply the trigger. He believes a combination of personality, fatigue, worry, and other mental/physical problems are the true cause of depersonalization/derealization disorder. I wish I had found his article a long time ago, because it makes a lot of sense.

It’s the same story over and over again.  Someone smoked marijuana with a group of friends and within 24 hours, usually sooner, they begin feeling unreal, depersonalized, foggy and detached. They are convinced that the marijuana had to have been laced with something that created this uncomfortable and distressing sensation. They worry that some sort of  “damage” has taken place inside their brain. When they contact the people they partied with, they are amazed to learn everyone else is feeling fine. Now they become very confused, worried and fearful…

…There is a simple explanation for this chain of events. Once understood, recovery is not difficult. It requires a simple yet specific process.

Continue reading Dr. Freedman’s full article on marijuana and depersonalization disorder here: http://www.anxietybustersblog.com/?p=344

Updated 11/22/2014

A year of church

Today was absolutely beautiful. The sun was bright, the temperature was perfect, and there was a nice breeze. A great day to mark one year that we have been attending our church. It’s been a pretty amazing experience so far. I’ve learned many new things, found new ways of thinking about the world and interpreting scripture, and have a deeper appreciation for Jesus and his message.

My pastor and I celebrated by going out for lunch and to see Blades of Glory. Will Ferrell and John Seder are hilarious together and the movie was very enjoyable.

Blogbits

Taxes – They are done and e-filed. That’s one less thing I have to worry about.

Worrying – I tend to give myself an ulcer being anxious about things that always seem to work out just fine.

Teenagers – Went to see a film last night titled The Messengers. I should have known the theater would be full of rude, obnoxious teens since it was a scary movie, but they still caused my blood to boil. They talked, text-messaged, and carried on cell phone conversations throughout the entire thing with no regard for the other patrons. I wanted to stand up and scream “Shut the h*ll up!”, but was afraid one of them would stab me in the parking lot afterwards.

‘For The Bible Tells Me So’

Last week I bought the gun. Yesterday I wrote the note. But last night I happened to turn on your show and just knowing that someday I might be able to go back into my church, I threw the gun in the river. My mom never has to know.

– a boy in Iowa

This email was the inspiration for a film making it’s debut at the Sundance Film Festival titled “For The Bible Tells Me So“. It delves into the Biblical interpretations that are used to condemn homosexuality, and explores lives that have been shattered by those condemnations. The filmmakers believe their film is inspired by God and I am looking forward to seeing it.

Here’s a excellent article from the Salt Lake Tribune that offers a more in-depth look into the documentary.

‘Home For The Holidays’

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This is my absolute favorite movie for reasons too innumerable to mention. Directed by Jodie Foster, it portrays an eclectic family that gather for Thanksgiving, only to question why they torture themselves with the tradition when it always seems to go so badly.

The doting mother frets that her children aren’t happy with their lives, the father is constantly eating junk food and playing his organ, the brother who has recently married his homosexual partner, a sister who’s obsessed with being perfect, and the main character (Holly Hunter) who has just lost her job and found out her teenage daughter is planning to go all the way with her boyfriend. What’s not to love?

The movie is well balanced with outright hilarity at the dinner table, followed by several poignant moments. In one scene near the end of the film, Holly is sitting with her father in the cellar as they watch old family films. He recounts a story from her childhood, and says it was the “great moment of my life, ten seconds tops.” That is sure to stir a little emotion in the most callous of hearts.

The real moral of the film is that no matter how different we are from our family members, we are still family and that is a bond that is very hard to break. My rating: A+

Blogbits

Imagine Me & You – A very cute film I watched Monday night. I needed a break from 9/11 coverage, because it was just too depressing.

Politics – Enough politics for awhile (unless I read or hear something really interesting). I tend to get a little upset with the injustices in our political system, so I have to take a step back and relax.

Twinkie – He is getting fixed on Thursday. I can’t pick him up until Friday afternoon, and I’m afraid he will be scared being away from home.

Honey – He’s been helping his mom move into her new place, and hasn’t been around much for the last week. I miss him.

La Dolce Vita

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I have watched Under The Tuscan Sun twice in the last week. The first time was when my boyfriend was at his mom’s for a few days, and then I watched it with him last night. I love it, and it is now one of my favorite films. The movie has a few flaws, but overall, I think it’s a wonderful film and Diane Lane is simply enchanting. She comes across as vulnerable, yet quick-witted, which doesn’t seem like a very easy personality to put together.

Anyway, the scenes from Tuscany and Positano have given me the fever to see Italy in person. Positano is pictured above, and it is this little cliff-hanger town where all of the buildings literally appear ready to plunge into the ocean!

I did a little research, and it would seem that two people would need to have at least $5000.00 to book with a tour group. I definitely think a tour would be the way to go, at least on my first trip there. I know virtually nothing about their customs, so I would need a guide to get me from point A to point B without getting a migraine.

I guess this is one of the trips that you keep in the back of your mind, and try to arrange for after retirement or when you’re a little older. There are so many places in the US that I still want to go, and that would be so much less expensive, that it seems like I should see them first.

I have a really strong desire to see California, especially Yosemite National Park, San Francisco, & Los Angeles. I would also like to go back to Washington, DC, and New York. I’ve been all over the northeast, south, and mid-west, but I’ve never been further west than Colorado.

One thing that has really hampered my travel plans is a fear of flying. If I can’t drive somewhere, then I usually just don’t go. I think I need to work on that, so that I can broaden my horizons a little.